What is an Epilepsy Nurse Case Manager?

Follow an epilepsy nurse case manager around for a day and you’ll see I split my day between empowering epilepsy patients to take charge of their lives and coordinating diagnostic procedures, treatment and clinic appointments for patients with specialty healthcare providers. Every single call is extremely important and prioritizing is a challenge I gladly accept.

Often times I am one of few people a patient with epilepsy can turn to for emotional support. They may not have many people in their life they can talk to about seizures. I listen to their fears about having seizures in public or losing control of their bowel or bladder and respond to them with encouragement and possible solutions. Answering questions about epilepsy, seizures, first aid and medications and informing them of reputable places they can go to for educational material for their condition usually leads them to feel more confident and over time, their fears subside. Sharing the facts about epilepsy and dispelling myths about the disease enables each patient to fully understand their condition and live the fullest possible life, despite their challenges. I find this part of my job is helpful in educating hospital staff and new nurses as well.

Perhaps the most important topic I educate patients about is taking their medications. Medications are extremely important to individuals with epilepsy. If they don’t take their medications and the blood level falls too low they may have a seizure, possibly causing a huge disruption in their lives. I urge patients to communicate their medication needs to me so I can assist them by talking with their pharmacy, insurance company, medication assistance programs and drug companies.

Sharing the facts about epilepsy and dispelling myths about the disease enables each patient to fully understand their condition and live the fullest possible life, despite their challenges.

Coordinating diagnostic tests for each patient helps provide important information about the type of seizure they are experiencing. Tests such as video electroencephalography (EEG) monitoring, lab work, magnetic resonance imaging (MRI), and magnetoencephalography (MEG) scans help doctors provide appropriate treatment. The Wada procedure is the most difficult to coordinate. Most epilepsy patients considering surgery undergo a Wada test. A Wada test is generally a safe procedure that looks at language and memory on one side of the brain at a time and requires the epileptologist, neurosurgeon, neuropsychologist, a free operating room and the patient to all be available on the same day at the same time.

Overall, an epilepsy nurse case manager acts as liaison between patients, their families and healthcare providers to ensure efficient and prompt healthcare services. We assess patients' needs and the effectiveness of the care that patients receive. I often put myself in their shoes and ask myself, "What if I had a seizure? What if there was a chance that I could lose my job or my driver’s license? Could I hurt myself or hurt someone else?" This technique helps me communicate with my patients on a level which I hope they find comforting.

Monica Bentzinger RN, BSN
Epilepsy Nurse Case Manager
The Nebraska Medical Center

Call 800-922-0000 to make an appointment with an epilepsy specialist. For clinic location and hours use the Find a Physician link.

Comments

[Dawn]

Monica has been one of the most important people in my life! She has helped me and my family understand this disease. And to help cope with how it has affected not only my life, but also the lives of my loved ones! I don't know where I'd be at without the Med Center and especially the nurse case managers! I just want to thank them for all the support they have given us!!!

[Juan]

Hello- I am not unfamiliar with espielpy- it has been affecting my family now for two years. My three year old son has left frontal lobe espielpy. He is on a daily medicine with supplement. I wanted to say thank you- I am a strong advocate of raising awareness to the cause. I recently came across The Epilepsy Warriors Foundation on Pinterest and Facebook and am grateful for the support. In honor of Purple Day today- my county co workers and I are all purpled out! As are my three children. Thanks for all you do to bring awareness to a cause.Dawn

[Emma]

Some of things I have ovresbed while following a high fat/low carb diet: The higher the ketosis (within reason, I am non diabetic so dka is not a problem)=the better I feel, less hunger, better sense of well being, more energy, less cravings, to name a few. I have heard people say that if they are in ketosis, the level does not matter, that is definitely NOT the case for me. The ketogenic diet for me is hard at first, it takes me about 3 weeks just to feel normal. I also limit water protein.

[Rani]

This diet has been a lifesaver for my dhueatgr, Cady, who is featured in this video. She is now 2 years 2 months seizure-free! We thank God, the keto diet and the doctors at Mayo Clinic for her miraculous recovery! Understand the video is about Cady not about me, my weight or what diet treatments I should try. Thus your comments should be about the keto diet as a treatment for epilepsy. If you wish to comment on my size, email me or remain silent. Doing otherwise undermines the message. Thanks.